First visit back to Stephi's Oncologist

Hi Everyone, This is Sibyl,

Stephi has been officially released from
the University of Kansas Medical System
and is back in the care of her Oncologist,
Dr Frank Slovik (Who grew up in Oakdale
just a mile from our hometown, McDonald, PA.
One of Stephi's favorite teachers, Ed Rousselelli,
is Dr. Slovik's uncle.) So it was a pleasant visit.
Stephi continues to experience fatigue, so much
so that she had to rest twice while she dressed today.
We picked Ken up at the Assisted Living Center
and right now both of them are taking naps. We
plan to go out for dinner tonight to celebrate Ken's
72 nd birthday which was yesterday.

I think from now on for the next 60 days, Stephi
is probably going to have days much like today.
We seem to be doing well at keeping her Pain
managed. The fatigue is going to be a given for
months. She will have intermittent nausea and
shakiness. She is extremely susceptible to any
and all infections for the next few months or even
longer until we can have her re-innoculated. Dr
Sllovik said as soon as she can get the nausea
under control, he will put her back on thalidomide.
Now that she can eat fruits and vegetables again,
she should conquer some of the bowel problems
she encountered.

So that is where she is right now. We are into the
boring(Thank God) rebuilding phase of her recovery.
I will continue to put up blog messages but
probably not as often as when we were struggling
to get her to Bone Marrow Transplant. We are so
grateful for all the support, cards, gifts, prayers
and well wishes.

Please feel free to write on the blog or email me
if you have questions. I promise to still put up at
least one blog entry a week, probably two.

Love,
Sib